Monday, February 24, 2014

Carlisle For Another Surgery?

Well, yes, you’ve read it right. That’s what his doctors want to do with him.

On my last post, UPDATE: What Happened To Today’s Check-Up, we were referred to a pedia-oncologist by his pedia-neurologist for further testing. When we got there, she just conducted a simple interview about Carlisle’s medical history. She even said chemotherapy would not be an option for Carlisle since the tumor is designed to not respond to it. She also said that radiation therapy is advisable to at most three year old children. She said they need to talk about it with her fellow oncologists in a conference whether they will allow us to go with radiation on March (which is his 24th month) or wait until he’s three.

So last Saturday, after waiting anxiously for two weeks for his pedia-oncologist’s advice, I decided to seek her pedia-neurologist’s words about what they’ve talked about in the conference, since she was also there according to one of her fellows. We arrived at her clinic by 12:30 PM and was checked past 5:30 PM already. We were her 13th patient. Her name is Dra. Antonia Moral – Valencia, by the way. She is the most reliable doctor that I know of, she patiently answers all my questions and expresses sympathy in our situation. She even let us have free consultation and says just add it to our funds.

Immediately, when she saw us, she asked if I already had a word with Carlisle’s neurosurgeons. It was supposed to last Monday, January 17th, but they keep on passing us to different doctors until we were not able to talk to anybody. My heart pumped like hell and I don’t know why.

“Hinihintay na sya ng neurosurge ah,” (His neurosurgeons are waiting.) she said. I asked why. And she said that what they’ve talked about in the conference was another surgery for Carlisle because the cyst grew unexpectedly faster than they thought.

“Wala na po bang ibang option?” (Are there no other options?) I said. Another surgery? A big no, my mind said. I don’t want to put his life at risk again. I was already traumatized when I saw him in seizure before he was transferred back to PICU. Yes, I’ve read that craniopharyngioma is a tumor that may come back even after surgery and radiation therapy. But I never thought it can be faster like this.

According to her, Carlisle was declined by hemo (I don’t know what they are for) and oncology because he’s too young to undergo radiation therapy. The last resort that they have is another surgery, to remove a part of the growing cyst. As per research, no one knows how big and how fast it can grow. Also, radiation therapy may be suggested if all visible tumor cannot be removed. That’s what the original plan is. According to American Brain Tumor Association, in children younger than three, radiation may be delayed by the use of surgery or hormone therapies.

Can the bi-weekly aspiration of fluid from his head be a little help to delay the surgery? Are there other medicines that I can give to him that can relieve him or stop the tumor from growing? Those were some of my questions, in teary eyes. Thank God, she understands why I don’t want Carlisle to undergo surgery again. It’s just eight months since his first major operation that almost took him away from me. I know this is for the best, but as long as there are other options, that I’m sure there will be, I don’t want to risk his life again.

She just said that she understands me, and will seek opinions from her fellow doctors that handle Carlisle’s case. If they will say yes for the postponement of operation, we will have another MRI procedure by April and continue his bi-weekly aspiration of fluid from his brain caused by the cyst. I do hope we would not end up to another surgery because it will kill me.

Happy to be with him. :)
With that, I decided to find more ways of how I can get funds for Carlisle. Aside from my work as a customer service representative which is my main source of income, I also am a part-time freelancer and an online shop owner. That would not suffice. I gambled my chances and messaged every Facebook owner that I know can help us. In God’s grace, Hope For Coby‘s page admin, which is the baby’s uncle, replied and shared some tips on how we can spread awareness about Carlisle.

I created Carlisle’s own Facebook page, Even A Cent Counts For Carlisle Von Patrick, and in just three days, we already got 403 likes and a lot of messages and donations. I was so amazed that I almost cried for all the help that we are receiving. Let’s do hope and pray that we have a positive news for the next follow up. Please like and share the page as well.

God bless everyone! Ciao! :’)


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