Sunday, September 1, 2013

Thank you, Shunt! :)

Here’s my Carlisle Von Patrick’s before and after bath pictures last Saturday. I decided to have his head hair shaved AGAIN since his doctor have to shave the shunt part for our drain sessions.

I think he needs to be bald until he’s three, since we were allowed by his doctors to perform radiation to fully remove the tumor brought to him by craniopharyngioma. Draining sessions are done every two weeks by his neurosurgeons from his shunt. From 13 CC last month, the fluid from the tumor went down to 7 CC, from black motor-oil-like to brownish in color. I’m hoping that’s a good sign.

Here’s how a pediatric shunt works:

Grabbed from Google.
We’re now looking forward to his MRI scheduled anytime this September. In fact, I’m waiting for it more than my birthday. He’ll have another MRI to check how’s the 20% tumor left going inside his head, and what other treatments should be given to him.

As of now, he’s doing good, I would say better than what he is before. He walks fast enough with both of his hands held, stands on his own knees, sits with balance, talks loudly and plays like any other kid.

Hoping that those hospital visits will stop as soon as possible. Needles are already driving me nuts. I really can’t stand seeing him crying and shaking everytime one is inserted to him. :(


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